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DMD Hub Staff Networks Educational Workshop 2025


Content
  • Introduction and aims for the day
  • Introduction to DMD
  • Therapies in development: Gene therapy, Exon skipping, Vamorolone and Givinostat
  • Duchenne Education in Care and Research Initiative (DECRI)
  • Central Recruitment Database
  • Feasibility Database
  • Re-Launch of the DMD Hub Network
  • DMD Hub Offer to Industry
  • Psychosocial Considerations in DMD
  • Managing Expectations and Research Transition
  • Advanced Clinical Practice in Neuromuscular Research
  • NCVR Refresher
  • NCVR Pre-costing model
Completion rules
  • All units must be completed
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