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DMD Hub Staff Network Workshop 2023


Description
This workshop was held in Newcastle on 16th November 2023. The aim of these workshops is to support the CPD and educational needs of staff at DMD Hub sites, who are involved or interested in the set-up, management, and delivery of Duchenne muscular dystrophy (DMD) clinical trials.
Content
  • Introduction and Aims
  • What is Duchenne muscular dystrophy? Clinicians overview
  • DMD clinical trials overview in the UK: Open and upcoming
  • Perspectives on gene therapy clinical trials (and preparing for treatments)
  • Psychosocial considerations regarding clinical trial participation
  • DMD gene therapy patient preference study
  • DMD gene therapy patient referral pathways in the UK
  • Hub and Spoke Model
  • DMD Hub offer to industry
  • DMD Hub central recruitment database
  • National contract value review (NCVR): Harmonising costings across sites
  • DMD Hub Staff Network Workshop Report 2023
Completion rules
  • All units must be completed
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